Mission: To educate and improve the experience of aging for mature adults and their caregivers.

Caregiving

Normal Health Standards

Blood Pressure

120/80 or less

Cholesterol

HDL (good)

50 or more – women

40 or more – men

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Senior Housing Options

Many Alternatives for senior housing exist today

There are more options available to aging adults than ever before.  When the WWI/II generation was growing up, there was only nursing homes which were essentially skilled nursing.  Since that time, it has evolved to include:

Independent Housing - This type of housing is similar to a condo arrangement but in a neighborhood of other similarly aged residents.  Activities and meals are often offered. Residents typically still drive and take care of themselves.  They are socially active.

Assisted Living options were designed to help those who are losing their ability to take care of themselves and may need assistance with activities of daily living such as toileting, transferring, bathing, dressing, assistance with eating, incontinence, medication administration, meal preparation and daily checks.  Continue reading

Stroke Symptoms & Rehabilitation – May 2011

Stroke Symptoms and Rehabilitation, June 2011

Caring for Parents Together Newsletter

Stroke Symptoms and Rehabilitation

Mr. R. was at a fireworks display and when he decided to leave, he was unable to stand. He seemed to have lost his sense of balance and his friends were very concerned. He thought he was experiencing a hemorrhagic stroke in which a blood vessel bursts and bleeds into the brain. It was the first of 7 strokes for him.

Another time, I walked into a client home and the caregiver, 32, was telling me that she had numbness down her left arm. She was encouraged to go to the Emergency Room but refused. Since I had other errands in the area, I suggested that she call me if she changed her mind. Ten minutes later she called. While I tended to the client, she went to the ER and discovered that she had a blood clot (ischemic stroke) inches from her heart. Her condition turned out to be genetic.

Research is now indicating that mini-strokes are an indication that a major stroke could be on its way. If you experience a momentary loss of consciousness, you may be having a mini-stroke.

Signs of a Stroke include:
 Numbness on one side of the body
 Paralyzed face muscles
 Slurred speech
 Blurry vision
 Loss of memory
 Difficulty moving
 Sudden dizziness, weakness, difficulty walking, loss of coordination and balance.
 Severe headache for no known reason

Anyone can help perform a quick test for stroke by asking the person to:

  1. SMILE
  2. Speak A Simple Sentence
  3. Ask them to raise both arms.
  4. Ask them to stick out their tongue. If it is crooked, they are having a stroke.

What should be done when someone is having a stroke? Call 9-1-1 or emergency services in your area. It is critical that the person be seen in the hospital within 1-3 hours (sometimes called the Golden Hours) in order to reverse the damage. Beyond that, the damage may be permanent.

What are the effects of a stroke? It depends on the person and the type of stroke they have. It also depends on other health conditions they may be experiencing and what part of the brain has been affected. Some patients are paralyzed on one side; some experience aphasia, a speech impediment in which the patient is trying to communicate but it comes out scrambled and unintelligible. Strokes often affect balance and coordination.

Are you at risk? You may be if you have high blood pressure, smoke, have diabetes, and/or high blood cholesterol. Being overweight and not exercising puts you at risk. If you have been told you have heart or artery disease, have experienced mini-strokes (TIA) or have abnormal heart rhythms, be aware that you are more likely to have a stroke.

Mr. R. had been trained as a chiropractor. He understood what was happening. He began to rehabilitate himself by working on his balance. He would place himself in a hall that was clear of obstacles. Then he would try to stand with his eyes closed. He next attempted to touch his nose. In the beginning that was difficult. Then he practiced walking with his eyes closed.

To work both left and right brain, he utilized a Super Yoga technique in which he placed his left hand on his right ear lobe and then he placed his right hand on his left ear lobe. With his eyes closed, he slowly bent his knees and lowered his body a little and then slowly came back to starting position. He repeated that, eventually working from 1-5 minutes at a time. This technique works both left, right brain and balance.

With his particular strokes, he experienced fatigue; inability to carry through on tasks; sensitivity to any stress; and nerve damage in his arms. Initially, he was very intolerant to hot and cold temperatures. Slowly the nerves began to revitalize themselves. He now has more feeling in his arms. He began to eat a whole food diet and stopped smoking and drinking. He still has good days and bad days but he is functional and enjoying life. Each day is now more precious.

Stroke Rehabilitation today has come a long way. According to Jennifer Gamble, Stroke Program
Coordinator of the Rehabilitation Institute of St. Louis, every stroke and every patient is different. Rehab technology may utilize different equipment to stabilize different conditions. Some current therapies include:

  1. Auto ambulator – This equipment has robotic legs that are strapped to the patients’ legs to help with the motion of walking. Research has shown that by practicing the patient’s normal gait pattern, it retrains the neuropathways in the brain and rebuilds muscles.
  2. REO – Occupational Therapists use REO equipment to aid patients to regain range of motion. Either the machine can guide the patient or the patient can use the robotic arm to touch the screen to move the machine.> > >
  3. Experia – Utilizes vital stem (electrical stimulation) and has a biofeedback component to strengthen throat muscles. Many stroke patients lose their ability to swallow and have to rebuild those muscles.
  4. Augmentative Communication devices include: a. I pad b. Touch screen c. Computer screen.
    Depending on their level of impairment, patients may be able to use a laser like pointer to tell the computer what they want to say. The touch screen device allows the patient to indicate what phrase they want to say and it says it for them.
  5. Free water protocol – Trials are being conducted that are yielding good results in helping patients to swallow again. They have to be on ‘No food or water’ status.
  6. Aquatic Therapy – A patient must be continent and have no open sores to use aquatic therapy but it yields great results as muscles are strengthened.
  7. Bioness- This equipment is used on either the foot/ankle or the hand/wrist as a vital stim for those muscles to facilitate motor return.

Ms. Gamble says that she has seen amazing success with some patients. A patient may come into the Rehab Center with a tube for water and food, bed ridden or can’t sit up, and then later walk out on their own.

Medicare as of June, 2011 pays for in-patient rehab. The length of stay is dependent on the patient’s diagnosis and how much assistance they need in the first three days after they are admitted. They use FIM scores to indicate how much assistance is needed. Other co-morbidities may influence how long Medicare will pay. Two to three weeks is a typical stay for acute stroke rehab although the rehab process can take months, even years.

As has been mentioned previously, the sooner a person gets in to be seen, the better. Technology will break clots in many instances. If it happened over- night, they may not be able to undo damage.

Medicare also pays for home health therapies. Once patients are discharged, they will continue to be seen by an occupational, physical therapist or speech therapist dependent on their impairments for up to 6 weeks to ensure continued progress.

The final thought I would like to add is that I have seen patients who had a severe stroke make a comeback. As prevention, eat a low fat diet; exercise both body and brain and stay socially active. These factors will improve your chances for staying functional and experiencing a higher quality of life.

For more information about the Rehabilitation Institute of St. Louis, go to http://www.rehabinstitutestl.com..

Question: What is the Golden Hour?

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Alcohol Use in the Elderly

Alcohol causes more problems as people age

Alcohol use in the persons 65 and over is notable for several reasons.  First, the older person has a diminished capacity to handle alcohol and what he/she was able to handle  when they were younger no longer applies. Secondly, because older people often have multiple medical conditions for which they are being treated, it can be dangerous to mix alcohol and medications. For instance, aspirin use with alcohol can cause excessive bleeding; acetaminophen and alcohol can cause risk of liver damage.  Allergy medication and alcohol can cause sleepiness, making it risky for older people to drive. Thirdly, as people age, they are subject to losses, changes in life arrangements, medical conditions and surgeries which create stress.  Alcohol and depression are relational, meaning that alcohol can contribute to a person’s inability to handle the situation and deepen the depression. Continue reading

What is an Advance Directive?

Advance Directives direct medical treatment when you are impaired

An Advance Directive or Living Will is a legal document in which you tell medical professionals what treatments you want or do not want given to you in the event that you are incapacitated and need treatment.  This document should be filled out by anyone over 18 years of age.  It takes effect if you are in a near death experience where withholding treatment could cause your death.  If there is an accident, parents cannot advocate for a child over 18 years and a wife or husband cannot advocate for their spouse without it.  An attorney can fill it out for you and on National Health Care Decisions Day each year, many attorneys volunteer their time to help you fill one out. Continue reading

Guardianship

Guardianship provides for an elder who can no longer take care of themself

Guardianship is a legal term used to denote a person who is taking care of the personal concerns of an individual in the event that they become incapacitated.  A guardian may be appointed by the individual while they have capacity in the form of a legal document often called a Healthcare Proxy or Healthcare Power of Attorney.  Secondly, the individual may give an institution, such as a bank trust department or an attorney, the authority to handle personal and financial matters upon their incapacity.  Thirdly, if no one has been appointed, the court will appoint a guardian.  Each state has different rules about how guardianship is handled.  Guardians are required to account for every penny spent on behalf of the individual to the courts annually. Continue reading

My Firsthand Experience with Alzheimer’s

When a Loved One Has Alzheimer’s

My mother had Alzheimer’s. It began with little strokes called TIAs where she would have numbness and tingling down one side of her body. She didn’t realize what they were. She was in the generation where women were not assertive so she did not tell the doctor’s assistant why she was trying to get in to see him. By then it was too late and she continued to have these TIAs.

Often dementia follows after a vascular event. If Alzheimer’s symptoms were present when the vascular event occurs, it weakens the body enough to trigger the dementia.

When her neighbor across the street from her died and her best friend across the block had passed, she no longer had people close to check on her. She was furious when we insisted that she move into an assisted living center. For one month, my brother and I were persona non gratis. Then she went back to the home she had lived in for over 42 years and realized she was glad that she no longer had the responsibility.

After her strokes, she continued to drive. She lived out in the country. She had a blind spot on her right and so she would only go on trips where she could turn left. We were terrified that she would hit a jogger or child riding a bike but she didn’t. During the last year, she did have three accidents. She was beginning to get lost on previously familiar routes. When she moved into the assisted living center, they provided transportation and so there was no need for her to drive. The car sat in the parking lot for a year before my brother bought it.

Difficult Behaviors

Mom became overtly sexual in a way that she never had before. She talked about it openly and it was out of character for her. She also began to drink wine. She would have ‘only a little bit’ but 15 minutes later, she didn’t remember that she had already had a little bit and she would have more. It masked some of her pain, I believe. This happened at a time when she was on oxygen all the time. We found wine bottles hidden throughout her apartment. She would just go to the grocery store and buy more. Her psychologist recommended giving her a little drink every night before bed. That way she could still have some.

Many times she would be frustrated and angry and say “Parts of my life are missing!” In the beginning she knew that she was losing her memory. She was depressed and felt like her control over her life was slipping away from her.

Later, she became more complacent. She couldn’t remember anything to make her agitated so she focused on what she appreciated about her family.

We found that anything hidden behind the door in the refrigerator or in the cupboards or drawers were as good as gone. She did not remember them. Eventually, we had to remove the coffeepot and have the oven unplugged because she couldn’t remember to turn it off and we were afraid she would start a fire. In the end she could not even change channels on the TV so she watched the same channel all day.

She couldn’t remember that we had come to visit her even if we had been there the night before. Finally, we placed a calendar by her bed with instructions that anyone who visited had to write their name in on the day so she would know that they had been there.

I had come for a 3 day visit in-between jobs and stayed with her. During that time I noticed that she was always scratching her face. It was dry so I purchased some moisturizer. Her nose was bleeding from the constant oxygen. The nurse suggested vasoline placed on her nose membranes to act as a barrier. Her toe had a fungus that had not been noticed by the nurses. I tried to soak her feet in vinegar which is good for removing fungus.

Saying ‘Goodbye’

During my visit I noticed that she was getting more and more tired. At lunch she was practically falling asleep in her plate. I walked her down to her room and she laid peacefully on the sofa. The intake nurse came in to take her vitals as she was being placed in a higher care facility. The nurse said, “Your mother’s blood pressure is only 80/40.”

“What does that mean?” I asked. She replied that protocol was that you sent them to the emergency room so I called 911. An ambulance wisked her off to the hospital. She had pneumonia but had shown no outward symptoms. I remember saying to her, “Mom, I just need to know that you are going to get better.” The truth was, it was only going to get worse.

Once she was treated, she moved to the long term care facility. Within a week, she had a massive stroke and was in a coma for 2 weeks. All of my brothers and sisters were there day after day and she even began to rally a little. The one day that we took a breather and didn’t show up to the hospital was the day she died.

Knowing what I do now, if the intake nurse had given me alternatives, I might have called my brothers and sisters and said, “Mom is getting ready to pass. Come say your goodbyes” However, nurses are trained in the medical model which is to cure. When one reaches a certain age though, there is not going to be a cure and it is important to let go and give them permission to go.

May 2011 – A Trip to the Hospital

A Trip to the Hospital

What should you take?

Make sure the patient has the following with them when they go to the hospital:

  1. Insurance cards
  2. Picture ID or driver’s license
  3. Personal health summary
  4. Numbers of all doctors patient has seen
  5. List of medications/amounts
  6. A copy of the Healthcare Power of Attorney document outlining who the doctors are allowed to talk to concerning the patient’s care.
  7. Suitcase with underwear, slippers, bed jacket or shirt that closes down the front and is easy to manipulate. Do not bring medications and leave all jewelry and valuables at home.

If caregivers have been coming into the home and have kept a daily log of symptoms, blood sugar levels and blood pressure checks, bring it along.

When a loved one experiences a health event, it is usually not planned. A state of confusion ensues for everyone involved. If the person helping is not familiar with the senior services arena, they often do not know where to turn and may not make informed decisions.

Choose the hospital ahead of time. Make sure it is on your insurance company’s list of approved providers. Post all emergency numbers for doctors, hospitals, dentists, and pharmacy on the refrigerator or some obvious place.

Check with the insurance company when hospital stay is warranted

Check with your insurance company for pre-authorization. Normally, your doctors will be in your insurance network of providers but the hospital staff may not. Be sure to
let them know if it was a hospitalist that saw you. Monitor your claims.

Make contact with the doctor and nurses who will see your loved one. There will be many nurses on different shifts coming in. They may not be familiar with your case so advocate for your patient. If you see something you question, ask about it. Healthcare POAs may have access to the nurses notes.

Begin planning for returning home?

Begin Discharge Planning with the social worker. Who will care for your loved one when they return home? Will they need in-home assistance with bathing, dressing, transferring, toileting, etc.? What condition will they be in when they are discharged? How long is recovery expected to take? Will they need rehabilitation services such as physical therapy, occupational therapy, music therapy or physical therapy? Ask what you can do to help speed their recovery and help them become self-sufficient once again. Check with nurses and the hospital social worker.

One of the most common diagnosis in hospitals among seniors is dehydration. Aging adults lose their ability to sense when they thirst. Keep water bedside and encourage them to take sips often.

When dealing with the insurance company, be sure to monitor the bills. They will come in from doctors, specialists, Xray technicians, CT or MRI scans, blood work, etc. for up to a year. Validate each charge and check for duplications or items the patient did not use. If a charge is denied by insurance, go through the appeal process. Most times it will be paid once more info is collected. The Denial Process has strict timelines so be sure to follow up soon.

Discharge Planning Alternatives:

What are some of the alternatives available to patients when they are discharged?

  1. In-home health aide. Most services provide a companion service which is for patients who need 24/7 monitoring. Ask if the aide is a CNA, certified Nursing assistant, who has been specially trained and can take blood pressure and sugar level tests. Some patients may need a private duty nurse to administer medications. Many home health companies offer a variety of options regarding care. Some will send in an aide for 1 hour to do bathing or prepare meals but it is more expensive that way. Ask how they screen their personnel.
  2. Rehabilitation facility – This is usually suggested if there is extensive rehabilitation needed that cannot be done in the home. It is more expensive but usually lasts for 2-6 weeks. All of the various professionals are available for services.
  3. Assisted Living: These facilities provide some nursing services and offer respite services as an option for patients who cannot be by themselves at home and may need meals and medication provided for them. It is a temporary situation.
  4. Skilled Nursing: This type of facility has nursing staff on call 24/7 and provides most medical services. Some times hospice services will come into the facility and administer to the patient. This happens especially if the facility is not associated with a particular hospice company.
  5. Group home: Group homes provide a safe environment for patients with mental illness diagnosis. It is usually an intimate setting and feels more like a family setting. It would not be acceptable for someone needing a lot of medical care.
  6. Geriatric Care Manager (GCM): These professionals come from different fields, i.e. social work, nursing, etc. Choose one that suits your situation. They will take your loved one to doctor’s appointments; advocate in the hospital and manage the services needed in the home. Go towww.caremanager.org to find a GCM.

Medicare is requiring many hospitals to be more proactive with discharge planning because too many patients were going home alone too early. They ended up being re-admitted. Medicare will be not paying for diagnosis for re-admission within a certain period of time. Hospitals will be docked payments for patients who catch something in the hospital or didn’t have adequate aftercare.

Some helpful links:
JAYCO (The Joint Commission) provides accreditation, training and sets quality standards for hospitals. http://www.qualitycheck.org/consumer/searchQCR.aspx

Nursing Home Compare – Ratings are available on nursing homes by entering your zipcode or city.http://www.medicare.gov/NHCompare/

Consumer Reports rates hospitals http://www.consumerreports.org

What Happens During Aging?

Advancing age signals changes on many levels

If you ask a younger person what happens during aging, they have no idea.  They may describe graying of hair or wrinkling of skin.  Aging isa very personal experience.  Not everyone ages the same and not every organ in the body will age the same.  Some people may look young and live life with gusto.  Others may look old by the time they reach 50 years of age.  Sixty is usually the age at which a person is described as mature  or aged.  The largest demographic of our population is the 85+ segment.  In the past, most people did not live much after 50.  Today people are living into their hundreds.  It is changing the way we will live our lives. Continue reading

Understanding Grieving

Grieving is individual but there are some commonalities

Recently, I attended a Grief seminar and learned many strategies for helping someone who is grieving.  Older adults fit this category as they are often losing spouses, friends, careers, social status (when they retire), financial status and the list goes on.  Seventy-five (75%) percent of all deaths occur in persons 65 or older.  Many of my clients would lose a spouse or have a health incident that they could not get past.  They would become stuck and could not live their life in the present.  They stayed in the past.

Grief is experienced differently over the life span.  Research has shown that the early parent-child attachment bond is crucial to determining how easily a bereaved person moves through the disorganization phase of the grief and into the reorganization phase of the grief process.  It is important for the bereaved person to experience the pain and process it as well as to establish the meaning of the relationship with the deceased.  Sometimes, they must be nudged to increase functioning in the present and to develop hope for the future. Continue reading

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